Advisors, Allies, & Facilitators

The People First of Missouri Advisor Book of Information and Advice: A guide for advisors developed by the People First of Missouri with support from the University of Missouri Kansas City-Institute for Human Development, University Center for Excellence in Developmental Disabilities.

Jack Brandt, Virginia UCEDDA Discussion Brief on Self-Advocacy Organizations in the State of Virginia and Nationally (written by Virginia State Team member Jack M. Brandt,   The Virginia Board for People with Disabilities, Virginia’s Developmental Disabilities Council, and the Partnership for People with Disabilities, Virginia’s University Center for Excellence in Developmental Disabilities, formed of a statewide self-advocacy organization in Virginia. This paper explores two approaches disability advocacy groups have used to achieve a common goal. The paper also reviews the structure of nine national disability organizations that have grassroots affiliations in Virginia.

The Advising Through Self-Determination guide provides advisors with a variety of resources, from general information regarding disability and advocacy to specific examples of activities that promote self-determination. Multiple organizations and individuals contributed to this guide, providing first-hand information from detailed traits of effective advisors to advice from both advisors and self-advocates.

People First of New Hampshire announces revisions to book, Large Pepperoni Pizza With An Advisor On The Side: How To Hire, Supervise, And Train An Advisors. Now With Audio Narration And Training Movie. This is a book which helps self-advocates learn how to hire and interview advisors, where to look for advisors, and how to supervise and train advisors. Order Here

Advice for the Advisors (written by Bill Worrell) This handbook was written mainly for people who are currently advisors to self-advocacy groups, such as People First, or similar self-advocate committees, such as the Consumer Advisory Committee of C.A.C.L. If you’re thinking of becoming an advisory, this handbook will also be useful.  Finally this handbook is a good resource for friends and supports of self-advocacy who are looking at ways to support self-advocacy.

Guardianship and Alternatives for Decision-Making Support For a youth or young adult who has intellectual disabilities, his or her health care transition often raises questions for health care providers and families about guardianship. Reaching the age of majority (18 years, in most states and jurisdictions) means, under state law, an individual is no longer a “minor.” As such, the person has the right and responsibility to make certain legal choices that adults make. For some young adults with intellectual disabilities, this may be an exciting opportunity for increased independence. However, there may also be family concerns about how to best support that person’s self-determination in making life decisions such as for health care or in financial management. This 2012 brief from Got Transition? National Health Care Transition National Center provides a broad outline of decision-making support options, both informal and leg! al, that may assist a young adult with an intellectual disability.